Transitioning from Pediatric to Adult Care While Transitioning to Undergraduate

Transitioning from Pediatric to Adult Care While Transitioning to Undergraduate from Generation Patient is a resource guide designed to support students with chronic medical disabilities and rare diseases as they transition from pediatric health care to adult health care while beginning college. The resource provides information on finding and establishing care with a new adult health care provider, preparing for the first appointment, transferring medical records, communicating with a new care team, and understanding health care needs while living more independently. It also includes information on accessing disability accommodations in higher education.

This resource can be used by college-bound students with chronic medical conditions, families/caregivers, and support professionals to prepare for changes in health care during the transition to adulthood. It can help students identify steps for transferring care, advocate for their health needs, ask questions when selecting a new provider, organize important medical information, and connect health care needs with college accommodations and supports. It can be used throughout a student’s transition to and participation in college and revisited as students establish new providers, navigate changes in independence, and identify additional supports or accommodations during their undergraduate experience.